Sign in | New here? Sign Up
A community of cancer survivors supporting each other.

Julie445's Profile

avatar
(November 23, 2010)

Biography

Single mother of 2 special needs teenagers. I was diagnosed with Primary Squamous Vaginal Cancer, Stage II in December 2007. I had no symptoms, this was found during a pelvic exam after my PAP came back abnormal which meant further testing. I went through concurrent chem/rads. I had 5 weeks of external rads along with 5 weeks of once weekly Cisplatin. I then had internal rad therapy with the SYED a month later. All was going well until this past Dec. and more testing to see if cancer was still there. Unfortunately recently out that I still have residual/recurrent cancer cells in same spot. Good news is it is still localized all other testing PET/CT, Chest Xray, and exam under anasthesia reveal no mets. I am a candidate for the Cyberknife and will start that soon, I find out 1/29/09 when this will happen. Have been given good news about this Cyberknife and it has a high success rate. Seems I'm always updating this! First line of treatment...failed me, 2nd line of treatment....failed me, 3rd treatment Total Pelvic Exenteration......failed me, now I am going to start chemo (Topotecan) on December 9, once a week for 3 weeks, one week off, repeat for 6 cycles. This sucker is still localized, praying hard this does the trick.

Vital Info

Posts

January 25, 2009

Ohio

Cancer Survivor

Cancer Info

Primary Squamous Vaginal Cancer

December 20, 2007

Stage 2

Grade 2

Negative

Negative

No

No

It knocks you down when you think you are at your best

Life is precious share it with the ones you love

Be there for the patient

Nauseaness. Positive: Kicks cancer's butt

I had absolutely no symptoms

Exams under anasthesia for biopsies and check for mets. No side effects. Then July 2009 had to have a Total Pelvic Exenteration for persistent cancer. Living iwth a urostomy and colostomy now.

Cisplatin, 1x weekly for 5 weeks. Experienced fatigue and severe nauseaness. Alot of aches and pains Starting more chemo On 12/9/09. This time it will be Topotecan for 6 rounds. Told I will go bald and I am not upset at all by this news. Bring it on.

Stats

Posts:
68
Photos:
0
Events:
0
Supporters:
99
Friends:
195
Comments:
-Made:
284
-Received:
537
Views:
-Posts:
139769
-Photos:
rollerFetching more entries....